RESEARCH NOTICE BOARD

The following research projects are currently looking for participants.

To take part, simply click on the research project and you will be directed to their website or online form, otherwise there instructions provided in the image description.

Please ensure you check their terms and conditions and

that you qualify to participate. 

Some of the topics discussed and/or covered can be confronting or troubling to some participants.

If you need support, please reach out to
Lifeline 13 11 14 or Beyond Blue 1300 224 636.

MCRI LongSTEPPP research
MCRI LongSTEPPP research

Researchers at The Murdoch Children's Research Institute (MCRI) believe that periods shouldn't ruin your life. MCRI's LongSTEPPP project is a 5-year study that will measure and track periods, pain, quality of life, and mental health in young people affected by period or pelvic pain and endometriosis to find out how to best care for them.

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Body image sexuality and wellbeing
Body image sexuality and wellbeing

The research team at the University of Tasmania (UTAS) would like to understand how Endometriosis impacts your overall wellbeing, body image, and sexuality. Any person, assigned female at birth, aged 18 years or older, is invited to participate in this project via online surveys that are completed at a series of time intervals. UTAS is keen to hear from people who may be about to have excision surgery or who have had previous surgeries. UTAS would like to thank Endometriosis Australia and their

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Endo at Work
Endo at Work

Endometriosis Australia in partnership with experts from Western Sydney University, University of Technology Sydney, and Southern Cross University is developing an Endometriosis in the Workplace policy for Australian employers. Our Endo@Work project aims to develop a set of guidelines for Australian employers, similar to those being developed for Menopause in many countries around the world, that will provide advice and guidance specific to different industries.

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Cairnmillar
Cairnmillar

Are you over 18 and living with Endo? Cairnmillar Institute is seeking participants for a 30 - 40 minute survey.

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VR versus telehealth
VR versus telehealth

Researchers from Flinders University are investigating the effects of telehealth-delivered versus virtual reality (VR)-delivered exercise programs on pelvic pain, mental health, cardiovascular health, and quality of life (QOL) in women with endometriosis.

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Uni of Melb
Uni of Melb

Researchers are interested in identifying transdiagnostic psychological factors that contribute to the development and maintenance of depression, anxiety and eating symptomatology in medically-ill populations, with a focus on endometriosis. This research represents an important opportunity to increase clinical understanding of these psychological symptoms in endometriosis and provide targets for psychological interventions aimed at reducing symptoms.

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Monash University: Endo Diet
Monash University: Endo Diet

Monash uni are wanting to see if there are dietary strategies to help relieve gut symptoms associated with endometriosis. Participants are asked to eat 2 different diets for a month each with a break of a month in between. food will be provided. You will be asked to complete a daily food and symptom diary, and at the end of each month complete a questionnaire and provide a couple of swab samples of faecal and vaginal microbiota. Participate: Email jane.varney@monash.edu

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Understanding endo pain experiences -Sydney Uni
Understanding endo pain experiences -Sydney Uni

Researchers at Sydney University would like to understand experiences of people living endometriosis, including factors contributing to pain. This study involves an initial 10-minute online survey, and possibly a 45-minute interview. Learn more by following the link!

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LongSTEPPP Research Study
LongSTEPPP Research Study

This project is looking at how periods, period and pelvic pain, and/or endometriosis, affects young people’s lives. Participation requirements: Young people aged 12-18 years old If your periods started at least 3 months ago You live in Australia

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Chinese Herbal Medicine for Endometriosis – Clinical trial
Chinese Herbal Medicine for Endometriosis – Clinical trial

Western Sydney Uni & UNSW, led by Dr Mike Armour are currently running a clinical trial on the effectiveness of a modification of a traditional Chinese medicine formula (Gynoclear) on the symptoms of endometriosis. This trial is open to women in Australia. It will involve having two blood tests, one at the start and one at the end of the trial, filling in online pain and symptom diary, and taking six capsules per day for three months. Learn more & participate by following the link:

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Researchers at Deakin University and The Cairnmillar Institute would like to understand how individuals with endometriosis feel about using Facebook for information and social support about the condition. We will also ask you about how often you use the Internet and how confident you feel about your ability to manage your health. Learn more by following the link!

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Psychological Functioning & Endo
Psychological Functioning & Endo

Researchers at Deakin University and The Cairnmillar Institute would like to understand how things like body image, sexual functioning, and quality of life might differ for people with endometriosis compared to people without. We are also interested in learning how participating in research such as ours makes you feel. Learn more by following the link!

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Healthcare & E-Literacy Study
Healthcare & E-Literacy Study

Researchers at Deakin Uni, Macquarie Uni, and The Cairnmillar Institute would like to understand your experiences of the Australian healthcare system regarding #endometriosis and how well you can find and use endometriosis information online. We hope to better understand the quality of care and information given and how this might impact your faith in the healthcare system and quality of life. Learn more by following the link!

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The HAPPI Study
The HAPPI Study

Researchers at Deakin University are seeking to recruit adults over the age of 18 years who have a clinical diagnosis of endometriosis and experiencing pain for at least 6 months. Eligible participants will be randomised to an 8-week program of yoga, cognitive behaviour therapy (CBT) or educational care. Researchers will use data collected via online questionnaires at Baseline, 8 weeks, 6 months and 12 months. To participate, please contact: thehappistudy@deakin.edu.au

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Self-Compassion & Endo
Self-Compassion & Endo

Researchers at Deakin Uni, Macquarie Uni, and The Cairnmillar Institute would like to invite you to test an online writing activity aimed at improving your relationship with your body. We are also keen to know how easy, enjoyable, and realistic the program is to complete. This study involves an initial 30-min online survey, and then a brief follow-up survey at one-week, one-month, and three-months. Learn more by following the link!

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Cannabis & Endometriosis Focus Group
Cannabis & Endometriosis Focus Group

Researchers from Western Sydney Uni and UNSW are interested in finding out more about the potential use of medicinal cannabis to manage endometriosis pain and related symptoms, and are running focus groups to explore participant concerns or barriers pertaining to its use, which ultimately will inform the design of a clinical trial. Click the link below to learn more. Please register your interest by emailing Justin Sinclair at 19948081@student.westernsydney.edu.au.

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Diaphragmatic Endometriosis Survey
Diaphragmatic Endometriosis Survey

Worldwide Diaphragmatic Endometriosis Patient Survey: Rachel Piccus, Medical Student at the University of Birmingham, UK and Robert Sutcliffe, Liver and Pancreatic Surgeon at University Hospital Birmingham, UK are conducting a survey on diaphragmatic endometriosis.

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