ENDO FACTS

Endometriosis affects   1 in 9   women

= Approx. 200 million worldwide
There are currently over   800 000   Endo Warriors in Australia
Click on each state for more information*
The following information is based on 2018 data.

You can only be accurately diagnosed through surgical

intervention.

It can take on average   7 to 10   years for people living with endometriosis to be diagnosed.

Hobbies

Symptoms such as pain, cramping, bloating, fatigue and nausea cost Endo Warriors time, money and quality of life.  

Relationships

Exercise

Work

Child Care

School

In turn, Endometriosis costs Australia  over $9.7 Billion  annually.

This does not include the cost to the Australian Health System.

Endometriosis costs on average  $30 000  

per Endo Warrior per year.

 Lost Work 

Productivity

Direct Health Care Costs

   GET INVOLVED  

Please consider making a donation to Endometriosis Australia. Endometriosis Australia endeavours to increase recognition of endometriosis, provide endometriosis education programs, and help fund endometriosis research.

Learn more about us here.

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If you are currently living with endometriosis, consider checking out our research notice board.

If you are looking to start your own research project, apply for a research grant here. 

Recommended Research Articles

*The amounts shown are an approximation based on research conducted in 2018.

 Endometriosis Research 

General Information

• 176 million women worldwide suffer
• 1 in 10 women suffers from endometriosis with endometriosis.
• Endometriosis impacts on all aspects of a woman’s life; it is not just the physical symptoms she has to deal with, but also financial, relationship, emotional and mental health aspects. (Ballard, K. Lowtan, K. Wright, J. 2006)
• There is a delay in diagnosis of between 7 and ten years.  This is due to girls and women normalizing symptoms as well as doctors normalizing symptoms when women do finally seek medical assistance. Early diagnosis and treatment reduce the long term impacts of endometriosis and frequency of invasive treatments and fertility treatments. Raising awareness is the first step to reducing the delay in diagnosis across all age groups. Education about menstrual health, what is normal and what is not is vital in younger age groups to break the current cycle of delay in diagnosis and flow on affects for the next generation (Ballard, K. Lowtan, K. Wright, J. 2006 & Dessole, M. Benedetto Melis, G., Angioni, S., 2012)
• The average cost per woman per year from endometriosis was calculated in a study across ten countries. The key points from that study were as follows;
o Alarmingly the average delay in diagnosis is seven years (also the estimated figure for Australia).
the severity of the stage of endometriosis did not reflect the severity of the symptoms
o Quality of life was impacted by symptoms, the main culprit being pain. It impacted on productivity levels at work as well as non-work related activities including, housework, exercise relationships, child caring, shopping and study.
the average cost of endometriosis per woman per year
• Total=€9,579  (≈$12,094.25AUS)
• Lost work productivity=€6,298 (≈ $7950.28AUS)
• Direct health care costs=€3,113 (≈ $3929.70AUS)
o The cost of endometriosis reaches further than the personal costs for a woman with endometriosis. It has a wider impact on the community. Lost productivity is twice the cost than the direct health care costs to a woman with endometriosis. This study doesn’t include the cost to a countries health system.

(Endometriosis Research Foundation Global Study of Women’s Health Consortium.)

Extrapelvic endometriosis: a rare entity or an under diagnosed condition?

http://www.diagnosticpathology.org/content/8/1/194

Endobronchial endometriosis presenting as central-type lung cancer: a case report

http://www.diagnosticpathology.org/content/8/1/53

Early-life factors and endometriosis risk

http://www.fertstert.org/article/S0015-0282(15)00469-0/abstract

The Surgical Treatment of Severe Endometriosis Positively Affects the Chance of Natural or Assisted Pregnancy Postoperatively

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4515280/

Advances in the genetics of endometriosis

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2988445/

IL-17A Contributes to the Pathogenesis of Endometriosis by Triggering Proinflammatory Cytokines and Angiogenic Growth Factors.

http://www.ncbi.nlm.nih.gov/pubmed/26259585

Gastrointestinal symptoms among endometriosis patients—A case-cohort study 

http://www.biomedcentral.com/content/pdf/s12905-015-0213-2.pdf

Role of colonoscopy in the diagnostic work-up of bowel endometriosis

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4408473/

Bowel endometriosis: Colorectal surgeon’s perspective in a multidisciplinary surgical team

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4229526/

 

Endometriosis and its coexistence with irritable bowel syndrome and pelvic inflammatory disease: findings from a national case-control study--Part 2.

http://www.ncbi.nlm.nih.gov/pubmed/18715239

Urinary retention following laparoscopic gynaecological surgery with or without 4% icodextrin anti-adhesion solution.

http://www.ncbi.nlm.nih.gov/pubmed/23731096

Update on Biomarkers for the Detection of Endometriosis

http://www.hindawi.com/journals/bmri/2015/130854/

 

Pregnancy outcomes in women with endometriosis: a national record linkage study.

http://www.ncbi.nlm.nih.gov/pubmed/26887349

Sexual function in women undergoing surgery for deep infiltrating endometriosis: a comparison with healthy women.

http://www.ncbi.nlm.nih.gov/pubmed/26668848

Laparoscopic excision of endometriosis: a randomized, placebo-controlled trial.

http://www.ncbi.nlm.nih.gov/pubmed/15482763

Clinical and quality-of-life outcomes after fertility-sparing laparoscopic surgery with bowel resection for severe endometriosis.

http://www.ncbi.nlm.nih.gov/pubmed/16962528

The direct and indirect costs associated with endometriosis: a systematic literature review.

http://www.ncbi.nlm.nih.gov/pubmed/26851604

A prospective study of dietary fat consumption and endometriosis risk.

http://www.ncbi.nlm.nih.gov/pubmed/20332166

Curcumin inhibits endometriosis endometrial cells by reducing estradiol production

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3941414/

Pericardial, pleural and diaphragmatic endometriosis in association with pelvic peritoneal and bowel endometriosis: a case report and review of the literature 

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3516977/

*Endometriosis Australia acknowledges individuals in the transgender community and people who are non-binary and living with endometriosis who may not identify as women

C/O Weston Woodley & Robertson

PO Box 1070 North Sydney

NSW 2059 Australia

© 2020 Endometriosis Australia. ABN 17 161 605 750